Hi I just saw your post from last year June 08 in Veterans today forum. First I want to say I hope you are still doing well and in remission.
My Husband was just diagnosed 6 weeks ago SC AO st.2 aggressive prostate cancer Gleason score 9 at VAMC.he is 63 in good health otherwise. so your cancer is similar to his.
I am getting very frustrated as VA did bone scan but will not do CT scan. they would like him to do trials of radiation/chemo before radical prosectomy. that would put surgery out till probably April. Even without doing trails which he doesn't want to do they are still booked out for surgery til April. said they would try to bump him up due to his aggressive type. but haven't heard anything yet.
in meantime i got him in to civilian oncologist and he says if it were him he'd do a ct scan and surgery in a month. we have ins. so are getting a ct scan ourselves and and surgery here if VA doesn't start getting a move on. We are still waiting to get appoints for CT and appointment with urology surgeon so not sure if civilian treatment will be much faster.
did you have these types of problems with VA taking forever? cancer isn't one of those things you can wait around and do nothing, as you well know.
Did you get treatment for yourself in a timely manner. Was it thru VA?
Was wondering if they can't treat you in a timely manner is their anyway one can get them to pay for treatment in civilian hospital??
We're you pleased with the treatment route you went with or wish you had something differently?
I am so worried that if it hasn't already metastasized to the bone it will if we have to wait that long for treatment.
if you have any advice on how to work with these people would certainly appreciate it.
also we filed immediately presumptive AO claim my hubby is already 40% sc disabled vet viet nam 67-69. so think that part will go fairly smoothly, but i have also seen that once your PSA is down they treat you as cured what a joke!!!
How have you fared with that? were you able to get P&T on your claim?
Anyway I wish you well and hope you have been able to avoid the land mines the VA keeps throwing out there and have mastered them and your Cancer. Please let us know if you can how your journey this last year has fared. Soon to be walking in your shoes. Jan
westerville wrote:I just joined today. I have locally advanced prostate cancer persumed caused by exposure to agent orange while serving in southeast Asia. They gave me my temporary 100% while under treatment. I will always be on some form of treatment. Have had surgery and radiation but psa rose after each treatments. I am now on hormone therapy with 6 month eligard shots. My doctor said I will stop the shots in January and go on growth arrest program with just avodart. The VA took this to mean I am in remission since my psa is now low and will no longer be treated after January 09. This is not true since their is no cure for my cancer just slowing it down so I can live longer. Usually the studys show hormone treatment keeps the cancer in bay for two years and then comes back more agressive. Anyone out there have any personal or general knowledge of some one in my situation? To assume just because my psa is low I am cured is really ignorant. The VA says that my dire prognosis to begin with gleason 9 staging t3anomx has changed and I am doing quite well. Sorry to be so long winded on this but just need someone opinion on this.
1/27th 25th infantry wolfhounds 69/ 70